On Saturday, June 3, our team is participating in Walk for Children’s 2023 presented by UPMC and UPMC Health Plan to support Addison in her fight against Hurler Syndrome.

Addison was diagnosed with Mucopolysarcharidosis Type I (MPS I), or Hurler Syndrome at 14 months old. Hurler syndrome is a rare, genetic, lysosomal storage disorder with no cure. It’s caused by a mutation of the IDUA gene. Children with Hurler Syndrome are missing an important enzyme that breaks down sugar molecules in the body. Without this enzyme, the sugar molecules build up causing damage to bones and organs.

Addison received a bone marrow transplant on January 11, 2023 and has been receiving her care at UPMC Children’s Hospital. Addison is the sweetest and strongest girl filled with courage and resiliency since birth. She has overcome so many obstacles in life and does so with a big smile on her face. Her journey however does not stop here. Children and adults living with MPS I have a lifetime of health concerns. Our goal is to continue raising awareness to improve treatment options and find a cure. All fundraising from this event will go to UPMC Children’s Hospital to continue providing exceptional pediatric care, treatments, and research for children & their families. 

Join us to walk a mile in their shoes for Addison and all other children overcoming adversities so they have a chance at a healthy future. Every step counts!